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101

Curing Keratoconus the High Tech Way

Keratoconus

This is an eye condition that occurs when the structure of the cornea degenerates. The cornea is the clear tissue that covers the front of the eye. It is normally round but when you have this eye condition, it slowly transforms to a conical shape.  This article is very specific to a number of treatments but keratoconus (http://www NULL.theeyepractice NULL.com NULL.au/keratoconus) has many treatments, which depending on the severity require careful thought and planning by a specialist in keratoconus. (http://www NULL.theeyepractice NULL.com NULL.au/Jim-Kokkinakis)

When you are suffering from keratoconus, your goal would be to improve your vision. Fortunately, advances in technology over the years allowed the development of new treatments of this eye condition to improve one’s vision and to stop the progression of the disease.  In Sydney and in Australia we are lucky enough to have many of these procedures well before other parts of the world.

Here’s a look at some of these treatments:

INTACS or Kera Rings

With the INTACS or Kera Rings treatment, tiny lenses are placed behind the iris to help transform the cornea into a rounder shape. This helps improve vision by clearing up the distortion or the transformation of the cornea into a cone shape caused by the keratoconus.

We have to admit that Intacs and Kera-Rings have on the whole been quite disappointing for most people.  Some get fantastic results so it is worth while considering if contact lenses have failed even when fitted by a contact lens expert.

Holcomb C3-R Cross Linking System or Transepithelial CXL

Holcomb C3-R Cross Linking System is a non-invasive procedure that makes use of a special solution containing Riboflavin and other natural vitamins to strengthen the fibers of the cornea and reduce its cone-like or steep shape over time. The solution is activated by an ultraviolet light that you are supposed to sit under for 30 minutes.

The Holcomb C3-R procedure strengthens your thinning corneal layers by increasing collagen cross linking of the cornea. This is essential because when the cross linking between the layers are weak, your cornea will tend to thin, bulge and be deformed. The weakening will likewise distort the images you see and it will change your vision. If left untreated, the fibers will continue to weaken and break down, thereby further damaging your corneal surface and worsening your vision. An advanced condition may warrant a corneal transplant. This is precisely the condition the Holcomb C3-R procedure wants to avoid.

This procedure may be combined and done simultaneously with other keratoconus treatments. It can be performed in both eyes simultaneously. 99.03% of patients registered full stabilization within a single treatment.

Success Rate

Note, however, that the Holcomb C3-R procedure does not completely reverse keratoconus. What it does is it slows down or halts the progression of the eye condition. It likewise might reduce the cone-like shape of the cornea that causes the distortion in vision. The likelihood of this is small though.

This is a relatively new procedure.  Long-term results are not available.  Currently in Australia we continue with the original CR-3 treatment, which involves removal of the epithelium and wearing a bandage contact lens for a few days.  This older procedure even though has some disadvantages has long term study and results that you can bank on.  In our opinion it is much better than the Holcomb version.

Benefits

Here are some reasons why Holcomb C3-R may be a good option for treating keratoconus:

•    It is a quick and safe way to improve vision as it does not involve removal of the epithelium.

•    The procedure is non-invasive and it is done in your doctor’s office.

•    It is pain free.

•    No risks are associated with the procedure save perhaps for a mild irritation that may occur a couple of hours after the procedure.

•    It only takes approximately 30 minutes and it continues to improve your vision for two to three months following the procedure.

•    It strengthens and stabilizes the cornea and it can even reverse the damage done to the cornea.

•    PLEASE NOTE: This procedure is as the NOT as effective as the more traditional collagen crosslinking.

If you are suffering from keratoconus, you should at least consult someone that understands thus technology in order to treat your condition.

If you have keratoconus, call us on (02) 9290 1899 and make an appointment. Keratoconus is our specialty.

About the Author

Dr Jim Kokkinakis (Optometrist) graduated in 1983 from the Optometry School University of NSW. He is currently a Senior Lecturer there and regular speaker to both Optometrists and Ophthalmologists in Australia and Internationally. He has a specialist clinical practice in the Sydney CBD with interests in Eye Strain, Computer Vision problems, Treatment of Eye Diseases and complex Contact lens Fittings.

Comments (101)

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  1. Luana Dvorak says:

    What would be the approximate cost of surgery for keratoconus?

    My daughter who is 22 years old, may have this condition and I would like to get an idea of what it could cost for the procedure.

    Your earliest reply would be appreciated

    Kind regards

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Luana
      There are various types of surgeries depending on what stage of keratoconus your daughter has. Where are you from?

    • Balwir kumar says:

      I have keratoconus in my both eyes. I have done C3r in my R.E IN AIIMS(DELHI) and it cost approx rs. 10000rupees.BUT In private hospitals it may be 40000to 50000rupees

      • admin says:

        Thank you for sharing this information about the Indian system. We often have enquiries from India. Being in Australia we have our own idiosyncrasies, when it comes to CR3 treatment.

  2. Andrew says:

    Hi Jim,

    I have been told that CXL wouldn’t work with myself as my corneas are too thin, although I`m reading details that Holcomb C3-R is different where success is had with thin corneas as well.

    Is this the case? I am from Brisbane.

    Andrew

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Andrew
      Again depending on your corneal thickness, thinner corneas can be done using a hydration technique, which artificially and temporarily swells the cornea using saline.

      The other thing to consider is your age. If you over 30, do not rub your eyes much and have well fitting contact lenses the chance that you need CXL is unlikely. It is imperative you see a good practitioner to advise you correctly.

      Regards
      Jim Kokkinakis

  3. Gillian Flynn says:

    Is your treatment considered appropriate for someone who has been diagnosed with keratconus who would like to join the ADF

    • admin says:

      Hi Gillian
      My specialty is in fact Keratoconus management. A book I wrote with 3 other specialists can be found here: http://www.theeyepractice.com.au/keratoconus (http://www NULL.theeyepractice NULL.com NULL.au/keratoconus)
      I have quite a few defense force personnel, who have keratoconus. Before any advice can be given you need to make an appointment for a comprehensive assessment. This can be done here: http://www.theeyepractice.com.au/bookeyeexam (http://www NULL.theeyepractice NULL.com NULL.au/bookeyeexam)
      Regards
      Dr Jim Kokkinakis

  4. Abdullah says:

    I am 15. I have advanced keratoconus in my left eye whereas a slight glare and irritation in my right eye.
    Can thus disease be stopped and a satisfactory vision achieved.

    • admin says:

      Yes it can Abdullah. Where are you located possibly I can refer you to someone that is an expert. If you are near Sydney you can make an appointment to see us at: http://www.theeyepractice.com.au/bookeyeexam (http://www NULL.theeyepractice NULL.com NULL.au/bookeyeexam)
      Regards
      Dr Jim Kokkinakis

  5. arun says:

    hi jim…I m arun..i m 25 years old..i m from india…..I m suffering from kerotoconus…my left eye is -3 and right eye is -3, I want to knw that wats the cost of holcomb C3-R test..plzz tell me as soon as poszible

  6. Vincent says:

    Hi Dr. Jim,

    I’m 53 and have been diagnosed with keratoconus last year. I’ve tried contact lenses, but they irritate too much and I cannot get used to them. Can you recommend someone in Melbourne that I can visit. I am not keen on a transplant and have read about Steve Holcomb being legally blind and was cured using non invasive techniques. Hoping this can apply to me as well.
    Cheers,
    Vincent

    • admin says:

      Vincent please see Dr Mark Roth in Armadale. At your age it is very surprising you have only just had a diagnosis. You have had the condition since your 20s most likely but were never diagnosed accurately. Corneal transplant is the last resort. without seeing your scans and examination results it is impossible to tell what you might be best suited to,

      Regards
      Dr Jim Kokkinakis

  7. Simran says:

    Hello Dr.Jim. I am having keratoconus in left eye only with -2.25 . And the other eye is fine. I wanted to know dat if both the defects are treatable . I mean to say simultaneously lasik laser and c3R can b done or not. And can u pls tell me the total cost of procedure in australia.. Thank you

    • admin says:

      Depending on the level of keratoconus (-2.25 does not sound high) laser and C3R can now be done simultaneously in Sydney Australia. I am not 1005 certain of the cost, but it would be around $4000 per eye

  8. Kris Herewini says:

    Hi Dr.JIm,

    I had an eye test around 6-8months ago and was told I have Keratocounus.I wasn’t told how serious it was but it is in my left eye,my right eye is fine.I am from Brisbane could you please refer me to a specialist that can help as I am looking to get this under control!!.I have noticed it since my early teens around 17-18 and did get it checked by the optometrists and they did nothing they just told me what it was and said come back for your next check up in a few months so I left it at that and I am now 22 and I can’t go on not doing anything.Please help.

    • admin says:

      In Brisbane you need to see either:
      mark Hinds, David Foresto or David Stephensen.
      Tell us how you go.
      Regards
      Jim Kokkinakis

  9. Eve says:

    Could you please give me an approximate cost for intacs to treat keratoconus?

  10. Hamish says:

    Hi Jim, im 29 and have advanced keratoconus in both eyes. I developed hydrops already about 7 years ago and have corneal scares in the left eye. I am currently fitted with a scleral lens in my right eye but vision is still poor with lens ie 20/80 or around there. Left eye cannot be fitted with a lens as it’s too sensitive and vision improvement isn’t that great. Without lens my vision would be about 20/800. Very blurry and distorted. Can cxl help the vision correction or will it only stabilize the cornea from getting worse and not improve my vision? I want to try everything before a corneal transplant. Can you recommend anyone in Brisbane that is good or I will fly down to syd if my vision can be improved.

    • admin says:

      Who has fitted the scleral lens in the right eye Hamish? CXL once you have had corneal scarring is inappropriate. Your best option at this stage is a scleral lens in the left eye as well. If it is fitted propely the eye will not be too sensitive. If the vision is still not good then you best option is a corneal transplant for the left eye. I think before you jump to that, make the trip down to Sydney and let me have a look. call us on (02) 9290 1899.

  11. Stuart says:

    Hi Dr Jim.
    I live in Adelaide & was wondering if the procedure is available to me in South Australia or would I have to travel interstate to get it done?
    My right eye is much worse than my left eye. I work nights & am required to drive around to government buildings. If my left eye gets as bad as my right eye I will no longer be able to work nights. So I could benefit greatly from this procedure.

    • admin says:

      Sure the best person to see in Adelaide is Dr Graham Fraenkel.

      Here is a link to him:

      http://www.laservisionsa.com.au/about/doctor-graham-fraenkel (http://www NULL.laservisionsa NULL.com NULL.au/about/doctor-graham-fraenkel)

      • Eye Care says:

        Dr. Fraenkel doesn’t do cornea as a specialty. You are better off seeing Dr. Aanchal Gupta who is a corneal specialist and does keraring and cross linking as well and has special interest in keratoconus too.

        • admin says:

          Thank you for the update in regards to Dr Fraenkel. Other corneal specialists in Adelaide are Dr Michael Goggin and Dr Richard Mills.

  12. Jay Ratna says:

    Dear Dr Jim
    My son (23 y) has been diagnosed with Keratoconus recently. Would you please recommend a doctor in Brisbane whom services can be obtained to cure his condition.
    thanks

    • admin says:

      Jay Please understand there is no “cure” for keratoconus. It requires expert management.
      There are a couple of good people in Brisbane.

      David Stephensen, Mark Hinds and David Foresto are all great practitioners for keratoconus management. At 23 sometimes a procedure called collagen crosslinking can be of benefit but this is a case by case situation. Don’t hesitate to contact us if you need anything else.
      Regards
      Jim Kokkinakis

  13. harmeet says:

    Hi..I m harmeet..I want to get rid of eye glasses..my right eye no. Is -6.00 and left eye is -8.00..bt I m diagnosed with keratoconus in both eyes..doctor says lasik laser is not possible..is there any solution in which lasik laser may b possible in keratoconus condition..I want to send u my keratoconus reports..provide me ur email pls..

  14. harmeet says:

    Pls send infomation on my email also..”baitonyhs@gmail.com”

  15. Joseph g. says:

    My name is Joseph. I live in Texas. Do you know of anyone here to help me with my karatoconus? I’ve been looking for just a short while now. Trying to find prices and locations. Thank you.

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Not sure about Texas, sorry. Columbus Ohio is the nearest i am familiar with.

  16. manal says:

    I have a mild keratoconus. My age 47. Am very shortsighted.
    Need to know the cost of the intact and the holocomb

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Where are you from? In the US is is $4000 for the implant and $3600 for the Holocomb treatment per eye

  17. Michael says:

    Hi Dr Jim

    I am 41, live in Perth and was diagnosed with Keratoconus around 25 years ago. I have worn RGP lenses ever since and my vision has been fairly stable over the years (same script for lenses for at least the last 6 years possibly more). Is it a worthwhile exercise investigate any of these newer procedures and who are the best people to see about this in Perth?
    Cheers
    Michael

  18. James says:

    Hi my name is James. I’ve had Keratoconus since I was in high school. My left eye is much worse than my right. I live on the gold coast in QLD. Is there someone I can see to talk about treatment options that is near me?

    Thank you

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Yes there is james but you will need to travel to Brisbane.
      I would recommend:
      David Stephesen
      or Mark Hinds up there

  19. Mel says:

    Hi doc, my partner was diagnosed with Keratoconus since June 2014.. That’s when it was just the one eye, now he’s right eyes is blurred up and he would have to squint he’s left eye to see even tho it’s not so clear . He’s is 24 years old, has a 2 year old baby and one on the way and we are suppose to get married next month. I’m afraid this will get worse for him, what do you recommend.. He also has surgery next month on the 16th for a transplant on his right, is this a good idea or should we try this ring treatment ? The reason why we are going through with surgery is because we were place on he waiting list and it will be for free for us as he is not working , all these other treatments have been quite expensive and we can barely afford any. Help us out doc pls

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      It is very unfortunate. I doubt the ring segment will help enough to make a difference.
      Sorry for the late reply but I have had some access problems to the website lately

  20. Ned Morris says:

    Hello

    I have kertoconus, but have trouble conisistently wearing my contacts due to my vision not being sper bad.

    so i would like to explore my options of the implants. Who do you reccomend to speak to in Melbourne city?

    Ned

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      For an unbiased opinion see one of the following
      1. Mark Roth
      2. Richard Lindsay
      3. Richard Vojlay

  21. Eve says:

    Do you know if CXL combined with T PRK has proven to give successful results.

    Also, living in Canberra, do you recommend any particular eye specialist or contact lens fitter to treat keratoconus?

  22. chrid says:

    is this treatment being done in usa and is do where i live in mich

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      It is but it is off label. FDA has not approved it yet for some reason, even though it has been performed in most countries around the world now. I am not familiar with practitioners in Michigan.

  23. mehreen rehan says:

    Hi dr Ji. I m 29 yr old..Have been diagnosed keratoconus in my right eye..have been told by an optometrists that no power of glasses will work in my right eye.I went for regular eye test due to headaches n reduced vision..have been using glasses with-3.5 in left eye and -6 in right eye..after the test she told be abt keratoconus in right eye and told no power will work now.she has given me new power for my both eyes I.e 4.75.. With left eye I.e -4.75 I m able to view things fine but I am very tensed about my right eye as the vision is extremely blur can’t read..who do u suggest to see in Melbourne.. Will be very thankful for ur advice. Regards

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Mehreen there are a few practitioners in Melbourne I can recommend.
      1. Mark Roth
      2. Richard Lindsay
      3. Richard Vojlay
      Find who is closest and go to them immediately

  24. Prachi says:

    I would like to know the cost of Intacs and C3R. I consulted a doctor in Chicago and he told me Intacs is $4000 per eye and C3R is $2500 per eye. When I researched on internet I found these figures are pretty high.

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      They are high but that is about the going rate in the USA. Please note for some reason the procedure has not been FDA approved yet as far as I know in the USA.

  25. Joann Swafford says:

    Looking for Any referrals in United States. N preferably in Texas. My daughter has this horrible eye disease. ..

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      What is the eye disease. I assume keratoconus. The closest I am familiar with is Columbia Ohio. Will that help?

  26. manicse says:

    Hi Dr Jim,
    i live in melbourne! i am 35 and diagnosed with Keratoconus at 18. i am wearing RPG lenses since diagnosed and my vision is stable but recently having trouble with wearing leans on right eye feeling very uncomfortable! i guess something is wrong and would like to visit an expert in melbourne for checkup and advise ?

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Sekar there are a few practitioners in Melbourne I can recommend.
      1. Mark Roth
      2. Richard Lindsay
      3. Richard Vojlay
      Find who is closest and go to them immediately

  27. Barbara Carbajal says:

    Hello,
    My son is getting ready to schedule a CXL procedure. Is this the same as CR-3? Is there a doctor in the United States that is performing the CR-3 procedure? And where?

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Barbara
      These two acronyms mean the same thing. CXL is not FDA approved yet in the US but quite a few practitioners are doing it off label. Where do you live and maybe I can recommend someone.

  28. Damien says:

    Hi jim I suffer from keratoconus in both eyes ive had a corneal graft unfortunately after 3 yrs it rejected im left with cloudy virtually no vision in the right eye I am on an operating waiting list are their any other options apatt from invasive surgery I am early 30s its always been a big problem with allergies and lenses are comfortable at the beginning but end up not fitting falling out and very costly please help

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Damien when you are in your early thirties if contact lenses are fitted accurately I would say that the majority of the time they should NOT fall out. I suspect they have not been fitted properly. Without seeing you that is my best guess.

  29. Nathan says:

    Hi Dr Jim;

    My name is Nathan and I’m suffering from keratoconus, I live in Perth WA and was diagnosed at 25 and I’m now 27.

    I’ve tried rigid contact lenses but could not stand them. I now have gasses. With or without my glasses im effectively blind in my right eye, my vision is solely reliant on my left eye.

    What do you think is the best course of action? I have a great optometrist named Ernie and he said the next step is cross linking

    Any advise would’ve appreciated

    • admin says:

      Nathan you need to see an expert in keratoconus. No offense to Ernie but he is probably not an expert. Collagen crosslinking is unlikely to be the correct option at this stage. I would recommend you see Damon Ezekiel in perth.

  30. viral jagada says:

    my name is viral.i am from india.my wife has carataconus sinc last 10 years.i want to kenw that does cr3 treatment possible in india and what is the cost.which doctor can i contact.i am from gujrat india.pls send me ans soon as possible.give me ans in my email address

  31. Hussain says:

    and please tell me the cost in melbourne and after the surgery how long that I can get back to normal?

  32. danny says:

    Hi,
    I have got Keratoconus and wearing scleral lens.have satisfactory vision but a kind of headaches and very problem in night driving with glare. Is there any way i can make my life easier, i did CXL as well. I am also pharmacist myseld but the hell KC took the life away. cant concentrate in anything and very difficult life..Suggestions please. appreciated.thankx.

  33. Yvonne says:

    Hi Dr Jim,
    My husband is turning to 30 next year, he is diagnosed with Keratoconus with his right ey a month ago with last stage, cornea front shown its 6.62mm for Rs, K251.0D, Rf6.96mm K148.50D and Cornea Back Rf4.99mm K1 -8.0D, Rs4.54mm, K2 -8.8D.
    We have seen two specialist said Corneal transplant is the only way for my husband, the cross link with Vitamin B is not suitable for him as he is at a very late stage, do you have specialist located in Gold Coast or Brisbane that we can meet for advis?
    Thank you.
    Yvonne

    • admin says:

      I would not recommend a corneal transplant until all forms of contact lenses are trialed but they need to be fitted by a contact lens specialist. In Brisbane i can recommend David Stephensen. He also has a close relationship with a great corneal specialist called Dr Andrew Apel. I would see David first and be guided with what he thinks.

  34. kirsty says:

    Hey. I was diagnosed with keratoconus around 6 years ago my eyes deteriorated to much for glasses early on and I currently wear rigid hard contacts and My eyes are slowly getting worse every year it seems. Was wondering if I could get the c3r treatment in Australia. I’m located in darwin. Thanks

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Kirsty. C3R is available in Australia, but would need to be done in Sydney. It is dependent on how well your lenses are fitted. We find that they are poorly fitted a lot of the time. A proper refit might be all that is required.
      More on keratoconus and its options can be found here (http://www NULL.theeyepractice NULL.com NULL.au/optometrist-sydney/tag/Keratoconus/)

  35. Chan says:

    Hi,

    I am at age 34 years old and was just being told I am diagnosed with Keratoconus. The doctor has recommended me to perform CXL although she said it might not be so effective for me due to my age.

    I am not sure should I give a try given my age and I did read articles that usually after the age of 30, it may stop progress and also it is no recommended for CXL due to the responsiveness to the collagen applies.

    Kindly advise.

    Thanks

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Chan doing CXL after 30 years of age is not likely to be of much benefit. Progression can occur after 30 if you have very allergic and itchy eyes or inappropriately fitting contact lenses. If you have only just found out I assume you are not wearing contact lenses. If you it would be best to have a consultation with a specialist optometrist to have your lenses looked at carefully.

  36. Faisal says:

    Hi D.Jim, who would you recommend to see in perth?
    Thanks,,

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Faisal
      Before you see any surgeon you should see a specialist optometrist in keratoconus. In Perth I can highly recommend Dr Damon Ezekiel. Look him up on your search engine.

  37. Ashutosh says:

    Hi, I am Ashutosh Gupta from INDIA, I have Keratoconus in my left eye and was treated with C3R in both eyes as a precaution for right eye. Later on Intacs were planted in Dec2014 . Since then there is very little improvement in my left eye vision. Feeling blurry in my right eye now. Can you please share what are the new research like stem cell therapy or some other treatment going on or approved to operate on eyes with keratoconus

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      Hi Ashutosh. There is some research now on using drops which will reshape the eye. It nearly sounds to good to be true at the moment and I suspect it is at least 5 years away from human trials.
      In the mean time I do not know anyone in India but you really need to now be fitted with well design scleral lenses. These will give you comfortable and great vision, but must be fitted by a contact lens specialist.

      • gautam says:

        Hello Jim I am gawtam from India I was done zyptix in 2013 after that I can’t get clear vision lot of problems occur in my eyes for example haloes, double vision, glare, night vision is low,blurry vision ,my doctor is not given correct answers for me I am 25 years old please what can I do

        • admin says:

          I assume this procedure is laser to correct the vision. You will need contact lenses to correct these issue, but must see a contact lens specialist.

  38. asiri says:

    Dr.Jim .I was diagnosed with Keratoconus.Could you please recomend a specialist in canberra for treatment as i haven’t had any treatments yet.
    Thank you.

    • admin says:

      Hi Asiri
      The best place to achieve this is in Sydney or Melbourne. before you consider any invasive treatment like collagen cross linking or intacs or corneal transplantation it is imperative that you get monitored for progression. We do this routinely as well as prescribe all vision correction options.

  39. Brendan says:

    Hi,

    I am 25 from Perth, WA. I recently visited an eye specialist and was diagnosed with keratoconus. The doctor highly recommended the collagen cross linking procedure. Just wondering who you would recommend in Perth to perform these procedures.

    • admin says:

      Brendan if you need a second opinion I would recommend Damon Ezekiel. he is an expert optometrist that can also advise if you need any surgicak intervention or just need vision correction.

  40. manu says:

    Hi,

    I am from Melbourne, suffer from keratoconus, have got the C3R bonding in both the eyes, but would like to know if there is any good surgeon in Melbourne who could help me further please. What sort of cost is involved, if I could get a rough estimate.
    Thanks

    • Jim (http://www NULL.optometrist NULL.com NULL.au) says:

      I am not sure about costs but a great surgeon is Dr Michael Loughan, Dr Laurie Sullivan or Dr Grant Snibson. Once you have done C3R where possible I would avoid any more surgery unless a specialist optometrist has seen you. Try either Richard Lindsay or Tony Jackson (Contax) in Collins Street.

      if you are not seeing properly then glasses or specialised contact lense that are comfortable are the way to go.

  41. Ebrahim says:

    Dear Dr. Jim

    Please provide an email address so I can attached my Eye Test / Topography from 2004 up to now.

    I have been advised to perform different corneal surgery (i.e. Cross Linking+Lasek, Corneal Ring +Cross Linking even corneal Transplant) by various specialist which is quite confusing.

    I would appreciate your expert opinion considering I am 42 years old engineer doing office work, No retina issue, normal eye pressure.

  42. Nicole Fisher says:

    Hi,
    I am trying to organise fundraising for a 22 year old man in Gambia with advanced keratoconus – he requires surgery overseas to fix it – I contacted HelpMeSee charity in New York to find a clinic near him. Through them I have been liasing with a man who oversees various clinics in the area including the one I sent this young man to. The ophtalmologist is preparing me a report so I can set up a GoFundMe page.

    Just wondering what we in Australia can do to help? He cant work he can barely read due to such terrible sight and his education has been limited due to this. I’d like to see him be able to see again and get a vocation (he’d like to be a plumber rather than a firewood collecter/cutter).

    Thanks,
    Nicole

  43. Nicole Fisher says:

    Hi Jim I have supplied you with the necessary document regarding the Man in Gambia with Keratoconus and need advice on what can be done for him, where it might be done, what follow up care might be needed and costs involved so I know what to fundraise for.

  44. Ahmed Abdallah says:

    Dear Dr Jim Kokkinakis, thank you for taking the time to read my email, i have kerodeconus in both eyes, i’m 38 years old and have had this problem since i was about 17 years old, i have tried glasses, soft lenses and hard contact lenses neither do the result, i currently wear glasses but have to take them off a short time later as my vision distorts and i have to squint to see, i have had a surgery in my right eye with a lens implanted behind the cornea about 10 years ago but it’s doing nothing for me, i have run out of options, my eyes are still getting worse and now i’m experiencing a burning sensation sometimes where i cant open my eyes anymore and they get very watery, my last option from my current specialist is a cornea transplant which i really don’t want to do, i’m hoping you can help me or point me to the right direction, i live in Melbourne 20 minutes from cbd, it would be much appreciated, thank you.

    • admin says:

      Ahmed I am really sorry to hear of your dilemma. In Melbourne who have you seen so far? Email me direct rather than posting on the site as it is likely that I will only see it in a month or so.

  45. Pranjal says:

    Dr.Jim, i was diagnosed with keratoconus back in 2012 when i was 14 years old, i underwent a surgery (C3R).now i am 18+, my vision is blurry and i was advised scleral lenses by the doctor but i cannot wear those, becauses it causes too much iching and redness and pain in my eyes. Please give me your opinion about what further treatment can i go for so that my vision may be improved, or which lenses i should now opt for or any new treatment that can help me improve my vision.

    I would really appreciate your opinion.

    • admin says:

      If these lenses irritate , it is likely they have not been fitted properly or you inserting them with preserved solutions. You need to see someone that specialises in scleral lenses. I assume you are not from Australia?

      • Pranjal says:

        Yes, I am from india. I wanted to know that is there any other option for me. Should i go for another lenses? Or should i try something else. I cannot see clearly from specs, and only option after having c3r are lenses as advised by doctors to me. When i went for my regular check up they told me the lenses are properly fit. I am using pro saline.

  46. Miriam Silvermintz says:

    My son, 25, was just diagnosed and I would like to prevent any further degeneration of his corneas. We live in Florida in the US, but will travel anywhere. Not sure if CR3 or C3 R will be covered by insurance in the US. Can you tell me where in Australia you are? What the cost is? Do you arrange phone consultations if the records are mailed to you?

    • admin says:

      Miriam before you think about Australia, I would like you to contact my colleague Dr Greg DeNaeyer in Columbus Ohio. he will be able to guide properly through this maze. The good news is that you son (assuming he does not rub his eyes) is unlikely to get too much worse now, even without CR3.

  47. Amin says:

    Hi dear Dr.
    I’m 24 and have keratoconus in my both eyes. I had ccl on both of them about 6 months ago and now i wear glasses(numbers are 0.5 and 1 for left and right glasses in order) and also did eye topography after ccl and result was Ok.

    1- will this disease progress to make me use contact lens and etc or just glasses will be enough?

    2-Is there any method to make my see sight 10/10?

    3-I want to be a neurosurgeon but I dont know that if it’s possible or this disease is going to destroy my dream? I know that in different countries, there are different rules for it but i just want to know if it’s possible or not?

    So thanks sir, from Iran
    If you reply to my E-Mail, I will be so glad

    • admin says:

      It is possible to see 10/10. Whether this is with glasses, or specialised contact lenses you will not know unless you see someone that specialises in contact lenses and keratoconus.

      • Amin says:

        Let me tnx for your answer. Could you please tell me that if this disease can prevent me from being a neurosurgeon? I know that any country has its own rules but I’ll be glad if you tell me about it in Australia

  48. John says:

    Hi im in Australia i have had it since i was a teen im now 35yrs. Hard contacts lenses have slowed it down. The next step scares me with if i cant see in a few years. i would love to not wear my contacts and be able to swim at the beach without losing a contact. can you help please

    • admin says:

      Hi John
      If you want to swim in contact lenses then the next logical upgrade is into scleral contact lenses (http://www NULL.theeyepractice NULL.com NULL.au/contact-lenses/scleral).
      These lenses are perfectly stable and are even used by elite water polo players. We do no encourage wearing contact lenses swimming, but if this is important to you then it is a very efficient way of achieving your aim. Please note these must be fitted by a contact lens expert.

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